Sunday, June 19, 2011

Living with HIV

A candlelit vigil for AIDS victims in LondonHaving HIV is not a death sentence any more thanks to advances in drug treatments.
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When the first case of HIV was diagnosed in Los Angeles in 1981, science had no answers to the serious and incurable Human Immunodeficiency Virus.

No one could have foreseen the millions of people worldwide who would become infected by this global epidemic.

Thirty years on however, and the virus is no longer a death sentence.

Thanks to improved drug treatments, which can control the infection, people diagnosed with HIV in the early stages can now expect a relatively normal life span.

Thirty-seven year old Kampamba, who lives in Bristol, found out she was HIV positive 15 years ago. She thinks she was infected by a boyfriend who did not know he had the virus.

The drug regime she follows to control HIV is "fantastic", she says, because there are no side-effects although she sometimes feels tired.

Her greatest joy is her 15-month-old son, who is not infected with HIV.

“Now my body is used to the drugs and there are no side effects.”

Mark Barham

"I did everything I could to prevent the infection passing to him. The ARV (antiretroviral) drugs helped that process and I also refused to have a normal delivery just to make sure.

"And I didn't breastfeed him either, which could have helped to transmit the infection to him.

"Knowledge is power - if you know what you are doing with HIV, you can lead a full life."

Mark Barham became HIV positive 14 years ago after a one-night stand with a man who then revealed to him that he had Aids.

He started ARV therapy four months later, and has been taking them ever since. But initially the drugs were not kind to him.

"I wasn't good at taking them because they gave me a head to foot rash, night sweats and three months of diarrhoea. I lost two and a half stones in weight.

"Now my body is used to them and there are no side effects."

Mark says he feels healthy. He ran a 10k a few weeks ago and did the 10k walk for life as well.

He is training as a counsellor and buddy for people who have just been diagnosed with HIV in Reading - something he says he would have loved when he was first diagnosed.

HIV combination therapyCombining anti-retroviral drugs has been a major step forward in fighting the virus.

The key to keeping people with HIV alive for longer are the antiretroviral drugs. They are not a cure, but they can stop people from becoming ill for many years.

The drugs have to be taken every day for the rest of a person's life to keep the amount of HIV in the body at a low level.

This stops any weakening of the immune system and allows it to recover from any damage that HIV might have caused already.

The combination of several anti-HIV drugs in one pill, called combination therapy, has been used to treat HIV patients since the 1990s and has improved treatment dramatically.

Dr Ian Williams, from the British HIV Association, says the side effects are still there but they can be controlled.

“We want to get people diagnosed earlier so that they can start therapy at the right time.”

Dr Ian Williams British HIV Association

"None of the drugs are perfect but they have definitely become more tolerable, and there are fewer problems with toxicity, failure and resistance."

Gus Cairns, from NAM, National Aids Manual, which provides facts and information on HIV and Aids, says treatment of HIV "has been an incredible medical triumph".

"In the early 90s, HIV was an incurable disease which was killing fit young people.

"People are scared of the virus in different ways now. It's a shameful thing to have, rather than a scary thing. People are not scared of dying any more."

But antiretroviral drugs are only at their most effective if the infection is diagnosed early, before symptoms appear.

Any delay in starting treatment could be crucial. Health Protection Agency figures show that three out of five of HIV positive individuals that die are diagnosed too late to gain the most health benefits from their treatment.

Dr Ian Williams said: "We want to get people diagnosed earlier so that they can start therapy at the right time.

"There is a move to do this - and we should acknowledge that we need to increase testing in GPs' practices and hospitals."

HIV virus on a T-cellThe HIV virus on a T-cell

In the UK, the fact there have been fewer deaths from Aids has resulted in a steady rise in the number of individuals living with HIV in recent years.

The Health Protection Agency estimates that by 2012, diagnosed and undiagnosed cases will reach 100,000.

Last year there were 3,800 people diagnosed with HIV who got the infection in the UK - and this number has doubled over the past decade.

So although HIV has become a manageable chronic disease, Dr Paul Cosford, executive director of health protection services at the HPA, says it is still a concern.

"Unfortunately in the last few years new diagnoses of HIV infections acquired within the UK are on the upward turn in men who have sex with men and the 30 year anniversary is a timely reminder that this infection is still very much an issue."

So is the prevention message failing to get through to certain communities?

Gus Cairns, from NAM, says the UK is not as good at HIV prevention as other countries.

“There is still a lot of ignorance around.”

Deborah Jack National Aids Trust

"There's something we're not quite getting right. It may be something to do with soft-pedalling on messages about HIV.

"We did take our eye off the ball on prevention. Not enough money has been put into it."

Yet hard-hitting public awareness campaigns like those which were broadcast on TV in the 1980s featuring an iceberg and the voice of John Hurt, are clearly unaffordable in the current economic climate.

They sent out a terrifying message which fed some of the stigma still surrounding HIV and Aids today, says Deborah Jack, chief executive of the National Aids Trust.

"Fear and ignorance made the stigma enormous but although much more is known about the disease now and treatments have improved, there is still a lot of ignorance around.

"The majority of people don't have stigmatising attitudes, but a small minority do."

And fear of that stigma can stop people from being tested, from talking to their family or partner and from seeking help.

We need to start talking about HIV again, she says.

"So often HIV is invisible."

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/health-13794889

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AUDIO: Church expected to back gay bishops

The Church of England is expected to confirm that openly gay clergy can be made bishops, if they are celibate.

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/uk-13833294

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Cut off

Christie Vincett tries on her isolation week equipment with friends

Christie Vincett shows her friends the aging kit she will be wearing during Isolation Week.

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A team of volunteers is about to begin an unusual experiment - for one week they will each be living a life cut off from the world around them.

There will be no conversations, no phones, no interactions with other people at all, with only the TV for company.

They're trying to reproduce the experience of more than a million elderly people who live lonely and isolated lives.

And for one of the 10 volunteers, 23-year-old drama student Christie Vincett, it could be a long week.

She has said goodbye to her boyfriend and flatmates and is preparing to do without all the paraphernalia that we take for granted.

So it's goodbye too to her mobile phone and to text messaging, and there will be no Facebook updates either.

Christie and the other volunteers will be recording their experiences on a video diary and will be able to post one-way Tweets, but there will be no other contact with the outside world.

"I'm feeling a little bit apprehensive and a little bit scared", says Christie.

“We send birthday cards to some of our beneficiaries and often they say it's the only one they get and they keep it up all year”

Jenny Sykes Friends of the Elderly

"But I'm looking forward to it at the same time, it'll be quite interesting.

"It's an experience for me and I'll learn something and I'm doing it for a good cause. But actually it's a serious issue for so many people."

In her flat in Golders Green in north London, Christie has unpacked various bits of kit sent to her by the charity Friends of the Elderly, who are organising the Isolation Week experiment.

So there are socks to fill with dried peas, beans and popcorn kernels which will mimic the painful sensation of walking on arthritic feet.

Distorting, fuzzy glasses give an impression of what it is like to live with impaired vision like cataracts or glaucoma.

And diving gloves will make it hard to pick things up or to manipulate simple items like a knife and fork as though you had arthritis.

All the equipment is designed to reproduce the physical challenges of ageing as well as the mental toll that living an isolated life can bring.

It's not surprising then that Christie has mixed feelings.

"I've got to try on all these pieces of equipment and experience some of what an elderly person would experience.

"But it's only for a short amount of time and then I get to come out of it, whereas many elderly people are experiencing this for years and years and years."

"I can't imagine what that must feel like. You do take advantage of the people around you when you call or text or Facebook a friend.

The 10 Isolation Week volunteers can't leave their homes, speak to anyone face-to-face, on the phone or over the internetPossible effects of isolation include loneliness, depression and a reduced likelihood of accessing support and servicesIsolation can mean living in a remote location but also 'emotional' isolation, having no-one to interact with.More than a million elderly people live isolated and lonely livesAnother million elderly people feel trapped in their own homes

"That communication is so quick - and to have that cut away for a week will be quite hard. I think I'll find myself going to call or text and then realise that I can't."

And research suggests that, while a million older people live isolated and lonely lives, another million more feel trapped in their own homes.

One in five older people see other people less than once a week.

Those statistics would be recognised by many of the residents at the Sir Thomas Lipton Memorial Home in Southgate.

It was originally set up as a retirement home for nurses and is now run by Friends of the Elderly.

One of the residents, Betty Judge, lived alone for most of her life.

She says she coped well most of the time, but there were occasions when it was tough.

"I did get the feeling of depression once. That was awful. I couldn't sort of ward it off. It would just come over you.

"I just left it and thought 'It'll pass', and I said a little prayer. That's how you get by.

"Then you think perhaps I should have had a family, but I wasn't the type for that."

Simple solutions

In fact elderly people who live a life of isolation are more prone to depression - and are less likely to try and get help and support.

But Jenny Sykes of Friends of the Elderly says overcoming loneliness doesn't have to be complicated.

"If you see an older person in the supermarket, you might be able to help them take that jar down off the shelf. And then don't run off - just smile at them and see if they want a little chat.

"So it can be something as small as that. It can be making sure your neighbour is OK, having a chat over the garden fence.

"And then don't let's forget our elderly relatives. Birthday cards can be so important to them.

"At Friends of the Elderly we send birthday cards to some of our beneficiaries and often they say it's the only one they get and they keep it up all year."

So while it could be a difficult week for Christie and her fellow volunteers, many more elderly people face a life of loneliness day in, day out.

Christie Vincett tries on her isolation week equipment with friends

Christie Vincett shows her friends the aging kit she will be wearing during Isolation Week.

Christie Vincett tries on her isolation week equipment with friends

Christie Vincett shows her friends the aging kit she will be wearing during Isolation Week.

Christie Vincett tries on her isolation week equipment with friends

Christie Vincett shows her friends the aging kit she will be wearing during Isolation Week.

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/health-13776954

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Unions warned over strike 'trap'

 
Ed BallsMr Balls accused ministers of "goading" the unions
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Shadow chancellor Ed Balls has urged the unions not to fall into a government "trap" by striking over plans to reform public sector pensions.

He said Chancellor George Osborne was trying to provoke industrial action so he could blame them for the weak economic recovery.

Writing in the Sunday Mirror, Mr Balls said ministers were wrong to announce changes before talks with unions ended.

Business Secretary Vince Cable has said there will be negotiation.

Union leaders are threatening the biggest wave of strikes since 1926, after the government unveiled proposals for public sector employees to work longer and pay more for less generous entitlements in retirement.

In his article, Mr Balls writes: "From David Cameron down, ministers are saying to the trade unions: 'Bring it on.' As in the 1980s, they seem to be spoiling for a fight, goading the unions and trying to provoke strikes."

“ He wants them to think that going on strike is the only option and the best way to win the argument”

Ed Balls

He said "everyone agrees public sector pensions need to be reviewed as people live longer" and pension rules "have to change" for younger workers.

But he added "the government should be getting round the table and talking changes through".

He said the economy was "flat-lining" and Mr Osborne was hoping there would be walk-outs.

"He knows he's losing the economic argument on the deficit and jobs and needs to change course. But instead he's trying to pick a fight about pensions, provoke strikes and persuade the public to blame the stalling economy on the unions."

Mr Balls added: "That's why trade union leaders must avoid George Osborne's trap. He wants them to think that going on strike is the only option and the best way to win the argument."

BBC political correspondent Vicki Young said the Labour leadership had until now refused to be drawn on whether the unions were adopting appropriate tactics in their fight with the government.

Public sector workers are already facing heavy job cuts and a pay freeze.

Why are public sector workers striking? Q&A: Retirement rules and you Guide to public sector pension schemes

The government proposals would see employees - bar members of the armed forces, police and fire service - receive their occupational pension at the same time as the state pension in future.

Many can currently receive a full pension at 60 but the state pension age is due to rise to 66 for both men and women by April 2020.

Ministers also want to move the public sector scheme from a final salary system to benefits based on career-average earnings. However, lower paid workers would not have their pension contributions increased

Speaking on Saturday, Mr Cable said: "The government wants to negotiate over this and our belief is that most trade unionists want to negotiate over this as well.

"It's a very big, complex, difficult issue. But there's got to be reform otherwise the burden falls on taxpayers and future generations. We have got to do something about it."

Dr Mary Boustead, general secretary of the Association of Teachers and Lecturers (ATL) has called for negotiations to start afresh.

But a strike by the ATL and the National Union of Teachers is expected to disrupt thousands of schools in England and Wales on 30 June.

They will walk out on the same day as PCS union members, who are mainly from the civil service and government agencies.

Unison, which represents 1.3 million people working for local authorities, the NHS, colleges and the police, has not yet balloted its members on industrial action. Its leader Dave Prentis said unions were prepared for "sustained and indefinite" strikes.

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/uk-politics-13826271

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VIDEO: Parkinson's research 'breakthrough'

Scientists in Oxford have made what they hope is a significant breakthrough in the fight against Parkinson's disease, pioneering a technique that turns pieces of skin into pieces of brain.

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/uk-13816815

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Greek PM calls for unity on debt

Greek PM George Papandreou calls on MPs to show unity and back the cabinet in its economic rescue plans.

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/world-europe-13830307

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Springsteen saxophone player dies

 
Clarence Clemons (L) grabs Bruce Springsteen during an appearance in New York in September 2007Clemons (left) and Springsteen worked together for nearly 40 years

Clarence Clemons, the burly saxophone player in Bruce Springsteen's E Street Band, has died, aged 69, a spokeswoman for the band has said.

Clemons was taken to hospital about a week ago after suffering a stroke at his home in Singer Island, in the US state of Florida.

Known as the Big Man for his 6ft 5in frame, Clemons' sound was credited with shaping the early sound of The Boss.

His solos powered Springsteen hits such as Born to Run and Jungleland.

Springsteen spokeswoman Marilyn Laverty confirmed the death on Saturday.

On his website, Springsteen said the loss of Clemons was "immeasurable" and that he and his bandmates were honoured to have stood beside him for nearly 40 years.

The statement said: "Clarence lived a wonderful life. He carried within him a love of people that made them love him."

It added: "He loved the saxophone, loved our fans and gave everything he had every night he stepped on stage."

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/world-us-canada-13827267

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VIDEO: Euro talks focus on the Greek crisis

Finance ministers from Eurozone countries are are set to meet in Luxembourg to discuss the crisis facing the Greek economy and the single currency.

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/world-europe-13827874

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Syria troops 'raid border town'

Syrian refugees cross into Turkey (17 June 2011)Thousands of Syrians are attempting to cross the border into Turkey to escape the violence

Syrian troops have moved into village close to the border with Turkey, say reports, as the government continues attempts to crush an uprising.

Thousands of Syrian people have arrived in the border area over the past week, escaping military action in the north.

Turkey says some 10,000 have crossed over to its territory but many more are camping on the Syrian side.

The UK has advised against all travel to Syria and urged its nationals to leave as soon as possible.

Activists say at least 19 people were shot dead during protests against President Bashar al-Assad on Friday.

Syrian state media reported that a policeman had been killed and many others wounded.

The UN says that at least 1,100 people have died since protests against President Assad began in March, but Syrian rights groups put the overall death toll in Syria at 1,297 civilians and 340 security force members.

Syria has prevented foreign journalists, including those from the BBC, from entering the country, making it difficult to independently verify reports from there.

Local people said the army moved into the town of Bdama, about 2km (1.2 miles) from the Turkish border, early on Saturday morning, firing machine guns and setting fire to buildings.

"I counted nine tanks, 10 armoured carriers, 20 jeeps and 10 buses. I saw gunmen setting fire to two houses," Saria Hammouda, a lawyer from Bdama, told the Associated Press news agency.

Reports say at least 70 people were arrested.

Bdama is close to Jisr al-Shughour, which has become the focus of military since the army was sent in on 10 June, saying residents had asked for help in restoring order.

Map
Map with footage from inside Syria

The authorities blamed armed groups for the deaths of 120 security personnel in the town earlier that week, although there were reports of a mutiny among security forces.

Jisr al-Shughour is now under government control - the authorities have called on local people who fled the fighting to return home, but the town is reported to be almost deserted.

Activists and witnesses said security forces had opened fire on demonstrators in several locations on Friday, killing at least 19 people.

At least eight people were killed at a huge demonstration around the al-Nour mosque in Homs, while deaths were also reported in the capital, Damascus, the eastern provincial capital of Deir al-Zour, and the province of Deraa in the south.

Tanks, armoured personnel carriers and buses were used to secure Maarat al-Numan and Khan Sheikhoun, both on the road linking Damascus and Aleppo.

Opposition figure Walid al-Bunni said the security grip on the country was weakening as the protests grow and spread through the country.

"More people are risking their lives to demonstrate. The Syrian people realise that this is an opportunity for liberty that comes once in hundreds of years," he told Reuters news agency.

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/world-middle-east-13822249

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